For Families

Over the years of my son’s illness, I have found information and connection in various places on the Web. This page will provide ongoing and updated links of interest to those dealing with a complex diagnostic process, absence of diagnosis, and/or degenerative disorders. Included as well are links to access poetry and literature online—poetry and medicine specifically and poetry not restricted to theme.

• Disability Studies Quarterly
• Camphill International
• Parent to Parent USA
• M.O.V.E. International
• Dougy Center
• Asperger’s Conversations
• Child Neurology Society
• Exceptional Parent
• We Move
• MedLinePlus
• Family Village
• PubMed
• National Institute of Neurological Disorders & Stroke
• National Organization for Rare Disorders
• National Tay-Sachs and Allied Diseases Association
• NYU Literature, Arts & Medicine Database
• Academy of American Poetry
• Verse Daily
• Poetry Daily