Links for Families
During my son’s illness, I found aid in various places online: these links may help if you are dealing with a complex diagnostic process, absence of diagnosis, or degenerative disorders. I’ve included links to the poetry and literature that helped me as well.
- Disability Studies Quarterly
- Camphill International
- Parent to Parent USA
- Dougy Center
- Asperger’s Conversations
- Child Neurology Society
- Exceptional Parent
- MedLinePlus
- Family Village
- PubMed
- National Institute of Neurological Disorders & Stroke
- National Organization for Rare Disorders
- National Tay-Sachs and Allied Diseases Association
- NYU Literature, Arts & Medicine Database
- Academy of American Poetry
- Verse Daily
- Poetry Daily